So we all know that generally one thing leads to another with relation to our health. The problem for many of us is how to stop this from happening. But what if we feel we know how to stop it but it's out of our control, then what do we do?
I have a dilemma at he minute of how I can convince certain specialists, counsellors and pain clinic on how I feel I can be best treated. I am shocked that not all of the information on me is not always there between different health professionals. As I have had to wait sooooooo long inbetween tests and appt.'s it's like I've fallen through the cracks. I am not getting the help I need when I need it.
If the services available to me actually listened to me and if all the services were actually properly linked then i might actually get the correct treatment. I am not a trained health professional so my ideas/views are not valid, but it's my body, it's me who is suffering, I should have a greater say in the treatment and medication that I recieve. If I convince one service to give me what I need then another service may not go with it and then well I'm stuck, I need all available things to be going in the same direction but they won't listen to what I believe will help me, they have the theory from their textbooks and well they have to stick to it, but not all cases are in the theory and services should be more flexible to accomodate people like me.
The only way I can get what I need is to go private, which I can't afford, it's like I'm a lost cause and I know I'm not alone in recieving similar treatment and similar care where we are basically left alone to suffer. it's not good enough but what can we do? Chronic pain and problems that are yet to be discovered/treatable/curable aren't seen as important and we are left alone to suffer.
Moan over, please feel free to comment if you have suffered the same fate as me.
Thanks for reading
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